Showing posts with label preemies. Show all posts
Showing posts with label preemies. Show all posts

Wednesday, November 17, 2010

Ellie's Story

In honor of Prematurity Awareness Day I will be sharing Ellie's journey. Some of it is posted in various post throughout the blog. I believe there is even a short birth story on here and one day I do hope to post a full birth story and how it came that we had a premature baby.

I will say this...there was no pre-e, no pre-term labor, nothing. Basically there was no warning....THANKFULLY there was a VERY vigilant doctor and nursing staff that insisted on non-stress test and bio-physical profiles even though the test had said I was NOT leaking amniotic fluid because the results of that bio-physical ultrasound showed MUCH different results in just 5 short days my fluid levels had went from a 12.34 (the high side of normal) to below a 2 (the very dangerous side of normal for baby and mom).

There were no decisions to be made I was delivering that day via c-section. Due to a condition Ellie had there wasn't even time to be monitored in the hospital for steroid shots to be administered to develop her lungs. We had been seeing a high risk doctor the entire pregnancy because Ellie had a 2 vessel umbilical cord they did not feel that this would present her with any problems but the doctor wanted to monitor her growth as it can cause intrauterine growth restriction during the third trimester. Ellie had no growth issues and there had been no fluid issues my entire pregnancy however due to this condition and the already fragile state of her umbilical cord the on call doctor (mine was out of town) felt it was best that we deliver immediately.

So March 16, 2010 at approximately 9:00 am I got the phone call that rocked my world. As she said we were having a birthday party and I was becoming a mom to a preemie. A preemie being born at 35 weeks that could be perfectly healthy and go home in 3 to 4 days or a preemie that could need a little help.

Ellie arrived at 5:13 pm. She weighed a healthy 5lbs 7oz and was 18inches long. She was crying and appeared VERY healthy. I spent a few minutes with her in the OR. Her proud daddy then took her to show her off and to the REGULAR nursery to get cleaned up! Ellie was doing great post delivery and right about bath time she started having breathing trouble. She was put on the CPAP carried down to my recovery room so I could see her precious face and then transported to the NICU were our roller coaster journey would begin.

Ellie did AMAZINGLY well her first night and was doing so great the next morning it looked like maybe that would be the end of our NICU journey but that wasn't to be. But by lunch time she was back on the CPAP. By late that evening the news begin to get pretty bad and she wasn't doing too well even with the CPAP. Come to find out her right lung had collapsed so it was time for a chest tube and to be intubated. Ellie spent one week on the vent which is a very short time compared to some but during that time it seemed like a lifetime and I was longing to hold that sweet little girl! Finally on the morning of March 23rd Ellie was off the vent and was time to get that little one in my arms for the VERY FIRST TIME!!!! She still spent another 2 weeks in the NICU.....learning to eat, talks of moves to bigger hospitals, getting brain scans to test for cerebral palsy, echos for murmurs, renal scans for kidney functions and countless other pokes, prodes and tests.

I know our NICU journey is one of many. I know it is short compared to lots. But, it's our story and on March 16 my world was forever changed. Not only was my precious baby girl brought into this world but she was brought into this world TOO soon. We experienced and saw too many scary things in that hospital! I don't want to change my journey but I don't want anyone else to have to experience it! I look forward to a day when all babies are born healthy.

Ellie Grace - 3 days old in her tanning bed

Stealing this quote below from Heather's blog everyone should go check out sweet Brayden and his story....the power of prayer is AMAZING!

"We can only appreciate the miracle of a sunrise if we have waited in the darkness"

Saturday, April 17, 2010

Things I never thought I would think about.....

I came across this on preemie message board. It is so true how these things now apply to our life. We are so thankful and blessed by this sweet little girl. We knew our life would change but it has now changed in ways we never imagined! Having a baby prematurely has definitely shed some light on things and made us take everything from a different perspective.

The post was titled understanding preemie parents. I am so thankful our NICU stay was as 'short' as it was as I know it could have taken a much different path. I feel so blessed to be at home now where the highlights of my day are playing with my daughter, giving her a 'real' bath, playing dress up, feeding on our own schedule, etc versus the NICU where the highlights of our days were changing diapers that were finally poopy, learning that the diaper weighed enough so they could stop measuring them, only holding her for 20 minutes at a time and being forced to put her back to bed even though she was wide awake, etc.

Here is the article....

so, we may go a little nuts

about having a preemie...
losing our full term pregnancy and...
losing our "ideal delivery"...spending too many hours in the nicu...
not spending enough hours in the nicu...
leaving the hospital without our babies...
holding our babies for the first time...
all the acronyms you can imagine, and some you can't: C/S, IVH, PDA, NEC, ROP...
the privilege of changing diapers...
caring for our baby...
about germs in general...
the wonderment of a baby nipple feeding...
pumping all the time...
our babies' isolette linens matching...finding preemie clothes that make us feel like we have "real" babies...
having a baby shower- at all...
finding the perfect carseatstrollercribrockingchairnursingpillowfillintheblank...
taking our babies home...
not having a monitor to tell if they're ok...
not hearing beeping for the first time in months as we watch them sleep...hand sanitizer...
your "allergy cough"...
your runny nose...
about germs in general...
cigarette smoke...
anyone under 5 feet tall being within 5 feet...
strangers wanting to touch our sweet babies...
about germs in general...our babies gaining weight...
our babies' matching clothes...taking pictures...
the march of dimes...termie moms complaining...
doctors' appointments...
insurance bills...
showing the nicu we appreciate them...
reading everything we can...
message boards and blogs...
experiencing parenthood...
trying to connect with other people in our situation...
adjusted age...
developmental issues...
about germs in general...
future pregnancies...
future everything...


about cherishing every single moment.
and all of this is completely normal.
for friends and family, please just give preemie parents a crazypass. we deal with many things that termie parents can't imagine. we carry worry, guilt, doubt, fear and a sense of being overwhelmed with us almost every hour of every day.